0

The Biology of Autism

  1. The gut.

You may recall me talking about a ground-breaking new study in January (Hope in Poo) where alterations in the gut ecosystem were linked to autism traits. These scientists used Microbiota Transfer Therapy (Fecal microbiota transplant (FMT), also known as a stool transplant, is the process of transplantation of fecal bacteria from a healthy individual into a recipient) which was tested and proven to improve gastrointestinal and autism symptoms.

The gut has always been under observation in autism study. That’s why a gluten-free and casein-free diet is an alternative treatment. In “Best Food Critic in Town” I mentioned: Marilyn Le Breton, who explains:

“When you eat, the food you consume is broken down in your stomach. The bits that are not used by the body are flushed out as waste matter. In autistic people, the breakdown of two proteins present in some foods, gluten and casein, is not completed properly. The resulting fragments of these proteins are called peptides. Peptides are small enough to pass through the wall of the gut, rather than being processed in the normal way. As the peptides journey around the body, they make a pit stop at the brain, where they do untold damage before continuing their journey and finally making their way out of the body, via urine. Both are very similar to morphine, a highly addictive drug.”

2. Stem cells

In “Dog Treats, Ice Cube and Rutgers University for Autism” I mentioned stem cells research, a first-of-its-kind study at Duke University in Durham, North Carolina. The study assessed whether a transfusion of the children’s own umbilical cord blood containing rare stem cells could help treat their autism.
Dr. Joanne Kurtzberg, who heads the Robertson Clinical and Translational Cell Therapy Program, teamed up with Dr. Geraldine Dawson, director of the Duke Center for Autism and Brain Development began a trial over two years ago. During this time 70% of the 25 children, age 2 to 6, were found to have behavioral improvements by their parents and tracked by the Duke researchers. The children traveled to Duke three times over the course of a year. They underwent a series of evaluations such as autism assessments, MRIs and EEGs to track their brain activity. On the first trip, the children received the cord blood infusion along with the intense evaluations. Each child received 1 billion to 2 billion cells, given through an IV in their arms or legs. At six months and then a year later, the children returned for more tests and observations.

Both Dr Kurtzberg and Dr Dawson have personal experiences with autism which shaped them and what they wanted to do in life. They are now in the midst of the definitive trial on whether cord blood can treat autism — a double-blind, placebo-controlled trial involving 165 autistic children, ranging in age from 2 to 8. The FDA has oversight of the study.

At present they are overseeing the definitive trial on whether cord blood can treat autism. This is tested by using a double-blind, placebo-controlled trial involving 165 autistic children, ranging in age from 2 to 8. The FDA has oversight of the study.

The hypothesis of the study is that certain immune cells within the cord blood are crossing the blood-brain barrier and altering brain connectivity while also suppressing inflammation, which may exist with autism.

3. Genes

 Autism Speaks‘ MSSNG Project, has highlighted an additional 18 gene variations linked to the development of ASD. Nature Neuroscience Journal, published a report on this project which found that the 18 newly-identified autism genes can be instrumental in understanding the pathways in the brain that affect how cells ‘talk’ to each other. Furthermore, the report talks about ‘copy number variations’ and abnormalities, which are  essentially copy variations found in areas of the genome once considered to be ‘junk DNA’. These areas, full of the copy variations, help to control when and where our genes switch on and off and appear to be crucial to brain development and function.

Genetic sequencing for autism is paramount if we are ever to understand what autism is and  how we can prevent or treat it. Understanding the biological factors that contribute to the condition can lead to better treatments for each individual case, as no two people on the spectrum present the same traits.

4. Mutations

Ten years ago, Michael Wigler and his colleague, Jonathan Sebat, reported that ‘de novo’ mutations (mutations occurring spontaneously) occur more often in people with autism. The mutations they noted were in the form of ‘copy number variants’ (CNVs), deletions or duplications of long stretches of DNA. Data from more than 600 families, they identified CHD8DYRK1ASCN2A as some of the leading ‘autism’ genes.

Right now, 10 years later, researchers pinpointed 65 genes and six CNVs as being key to autism.  “More and more, we are erasing this idea of autism being a stigmatizing psychiatric disorder, and I think this is true for the whole of psychiatry. These are genetic disorders; this is a consequence of biology, which can be understood, and where traction can be made.” says Stephan Sanders, assistant professor of psychiatry at the University of California, San Francisco, who co-led the study.

Conclusions:

17498754_10155029868955030_8234493783036613159_n

The stigma attached to autism comes from the early link between autism and

schizophrenia. Swiss psychiatrist Paul Eugen Bleuler coined the term ‘autism’ to describe a key feature of schizophrenia. Specifically, Bleuler used ‘autism’ to describe how people with schizophrenia tend to disengage from the outside world. It was not until 1943 that an American child psychologist, Leo Kanner, reclaimed the word for the range of traits we know today as autism. Psychologists Noah Sasson and Amy Pinkham hope to build up a new vocabulary to help disentangle the two conditions in “The social ties between autism and schizophrenia“.

Autism is also commonly misinterpreted as a learning disability. Despite the fact that a good percentage of people on the spectrum may face learning difficulties in addition to an autism diagnosis, or may present the familiar autism symptoms, the two are separate. Intellectual disability, also known as learning disability, is currently defined as a significantly reduced ability to understand new or complex information, to learn new skills and a reduced ability to cope independently. Typically, this is measured by intellectual functioning (commonly referred to as IQ) and adaptive functioning  (day-to-day independent skills), both of which are significantly below that which would be typically expected with difficulties in most, if not all, areas of intellectual functioning and daily living skills.

This is why we need to learn, read and understand autism. Appropriate assessment and formulation can facilitate early intervention and help people on the spectrum get the help they require early on.

Our generation is lucky enough to be living in a time where autism is at the forefront, our stories are being heard and the research is ground-breaking. Stop wasting your time reading about Blac Chyna and the Kardashians and read these reports. Maybe next time you use the word ‘autistic’ you’ll know a more about what it means. Maybe if you learn about autism and teach your children about it, they will be inspired enough to become the ones that solve the puzzle. It may be that you are the one.

0

Our Golden Hat will go on – #APD2017

It’s Autistic Pride this Sunday – 18th June 2017. In honour of the day I will be writing about different foundations from all over the world and how you can help.

“After watching A Mother’s Courage: Talking Back to Autism with my daughter, she turned to me and asked, “What if I wasn’t able to tell you I love you, mummy?”” – Kate Winslet (aka Titanic aka A-list Hollywood actress aka autism advocate).

Co-Founders Kate Winslet and Margret D. Ericsdottir met when Kate recorded the English narration for Margret’s documentary, A Mother’s Courage: Talking Back to Autism, which captured her journey to find a way for her nonverbal autistic son, Keli, to communicate. Throughout her journey she visits scientists and families all seeking  a way to get to know the person behind autism better. To get to know her son.

The Golden Hat Foundation is a non-profit organization dedicated to changing the way people on the autism spectrum are viewed by society. They focus on abilities and potential, education and career training. Long-term goals include the establishment of innovative post-high school campuses designed for people on the spectrum.

This is a great organisation to support and follow. Here is what you can do:

  • Learn more about the organisation
  • Subscribe to the monthly newsletter
  • If you are in Texas, attend one of the Meetup Groups and share your experience
  • Volunteer
  • Donate
  • Visit their blog

In July 2015 I wrote an article for Autism Daily Newscast: 5 things my brother’s Autism stole from me and the Golden Hat Foundation shared and retweeted Christos’ story.

The Golden Hat11752398_10153455833490030_5815753847288641852_n
This boy had a golden hat.

The hat was magical. It could talk.
The boy did not have any voice. He had autism.
His hat was always with him.
His hat was lost one day.
Now he had no way of telling them his stories.
His mom and dad became sad.
They taught him spelling on a letterboard.
It was hard.

I think the great thing about The Golden Hat Foundation is that it is a partnership between two mothers, whose experiences with motherhood are exceptionally different. Yet, they come together because they are both mothers. Just like we need to come together, despite our lifestyle differences, because we are human.

Happy Autistic Pride Week!

0

Under the Sea

18618642_10155212899245030_1725112754_oWhen visiting friends and family while Chris was growing up my parents needed a distraction; that was either food, or Disney. My dad had friends who worked for a museum in Larnaca and we used to visit them often and eat yummy food. They had a little girl who owned ‘Magic English’ cassettes. For those of you who don’t know, they were an aid to learning English by using Disney characters and movies. He took one look at the opening theme song and that was it: obsession acquired. (Episodes here) I know that my family is probably reading this and remembering the theme song in their heads right now. ‘Magic English, Magic English, have fun with Disney everyday‘.

Naturally, we had ALL OF THEM.

When I was growing up, I was lucky enough to learn both Greek and English and so growing up bilingual. When Chris started speech therapy, he had his Magic English tapes. He watched them non-stop. He didn’t play along, or speak, or use the same words but he paid attention. So, for example, when he saw Flounder he knew he was a fish, when he saw Mickey he knew who that was, what he was doing and why. He just couldn’t express it. You see, the problem with the world today is that we value spoken word over unspoken. We have been programmed to believe that someone who doesn’t ‘like’ your picture on social media thinks you’re ugly. Someone who doesn’t share their feelings is up to no good or doesn’t care. We stopped reading between the lines and somewhere between those lines is my brother.

There is one scene that I remember most of all. It’s using the Little Mermaid, introducing all the characters and ‘Under the Sea’ is playing. Sebastian is singing away, being all Sebastian about life under the sea, I think it was part of the Friends learning cassette. I remember him smiling, dancing, and enjoying that scene. I remember how much of a teenager I was thinking this was silly because it was so basic. I remember it now, and I wish I was back there pushing him to repeat words, to learn them in English, dancing with him and just enjoying his happiness. Hormones are such nasty things. (Magic English – Under the Sea). Before Aladdin and the Lion King, Chris was obsessed with Pinnocchio, the little boy who wished to be real. He loved it when Pinnocchio and Jiminy were under the sea meeting random fish and trying to find Geppetto; and he would hide when the whale was on screen. That scene is also in the cassettes.

Those cassettes were a big part of our childhood and yet another part we owe to Disney.

He loves anything that has to do with water or the sea. You may remember that it was during a Sandy Holiday that we first thought of autism and how he loves swimming on his own. Aquatic treatment is also one of the alternative therapies I mentioned earlier on: We’ve found that water provides a safe and supported environment, which not only supports Chris, but also provides him with hydrostatic pressure that surrounds his body in the water. This pressure actually soothes and calms him, providing him with the necessary sensory input he craves.

What awoke this memory you wonder? Or maybe you don’t but you’ll find out anyway. The Scarborough Sea Life centre introduced an autism-friendly morning last Saturday (13th May). The centre will opened an hour early for an “Autism friendly session”, “with an accessible quiet area, considerate lighting, reduced sound and exclusive use to help families enjoy the aquarium experience in a relaxed and understanding setting.”

If you are in the UK: Max Card is a card you can apply for with your local city council if you are a family with additional needs, not just autism. The scheme is designed to help families save money on great days out at castles, zoos, bowling alleys and more. With local, national and international businesses becoming more autism aware this card might be used more than you think! Autism-Friendly events are expected throughout Merlin Entertainments attractions including Alton Towers and other Sea Life centres in the upcoming months to make sure all children in the UK have the chance at experiencing a magical day out. For more information and booking details are online at www.mymaxcard.co.uk/venues/autism-friendly-day .

I encourage you to use the Magic English aids (^they are all on YouTube, link above^) whether your child is in speech therapy yet or not. Its an entertaining way to spend the afternoon and you may not see immediate results but it does make a difference.

Remember, just because you can’t see progress, doesn’t mean it’s not happening.

18575422_10155212899230030_1773893487_o

2

Dog Treats, Ice Cube and Rutgers University for Autism

What is Silver Linings?

I go to Silver Linings to watch for any balloons we can reach and move to our world, and here are the ones I have been following in the last couple of months:

  1. Finley’s Barkery in Minnesota “embraces neurodiversity and empowers people to do what they love. 80-90% of adults with Autism and other developmental disabilities are unemployed or underemployed. Finley’s Barkery set out to change that statistic. By utilizing one’s unique strengths, our team takes pride in their roles from handcrafting the treats, to marketing and sales.”
  2. McDonald’s in Indianapolis: Leif, is 7 years old and has autism. His mum explains that “A classmate brought one of the toys to school and Leif saw it and spent the next two weeks hardly talking about anything else with us. He gets really fixated on things and creates stories around toys.” So, like any mum, they went to Mc Donalds and asked for the toy. Unfortunately, the toy had been sold out. *Enter Awareness*TaQualliyia, a 16-year-old employee, overheard that encounter spoke to her manager about the situation. With the manager’s approval, TaQualliyia spent 15 minutes dismantling the display behind the counter as Kandel and her family were eating lunch to get the toys for Leif. Read the story here.
  3. Results of a new study have revealed that brain scans might help predict autism in babies before symptoms appear. “We see an increased rate of growth in the outer surface of the brain, the folds, the sort of waviness of the surface that’s followed by an overgrowth of the brain in the second year,” says senior study author Joseph Piven, M.D., of the University of North Carolina-Chapel Hill. The overgrowth of the brain they observed coincided with autism-related behaviors that start to emerge when the child reaches their second year, the researchers said. Read the story here.
  4. Represent, a social merchandising and marketing platform that enables influencers to create and sell custom apparel, announced their collaboration with Ice Cube in launching a limited edition apparel campaign to benefit Autism Speaks. Ice Cube is very vocal about his autism family. “I’m proud to support the great work that Autism Speaks does, a cause that is so important to me,” said Ice Cube. “My goal through this campaign is to not only help raise awareness but to also support this great organization’s efforts in promoting solutions for the needs of individuals with autism and their families.
    Ice Cube’s design is available on a variety of products for men and women, starting at $24.99, available at Represent.com/IceCube.
  5. In Oklahoma: Children on the spectrum were able to practice their pre-flight skills and how to be an airline passenger through the Wings for Autism program. The free event, which was held Will Rogers World Airport for families, brought children from across the state to participate in the program and had a waiting list. Watch the video here. Wings for Autism will be held in Allentown, PA May 6, 2017, Fresno, CA May 13, 2017, Appleton, WI – May 13, 2017, Denver, CO – May 13, 2017.
  6. Special Books by Special Kids: Founder and teacher, Chris Ulmer, began Special Books by Special Kids (SBSK) to share the unique talents and incredible personalities of the students in his special education classroom.
    Special Books by Special Kids is leading a global acceptance movement that brings awareness to the joys, needs, and struggles of the special needs community and promotes the acceptance and celebration of neurodiverse individuals by all. You can watch a beautiful video of Jon teaching his classmates about planets here.
  7. Legoland Park, Florida: Since 2016, Legoland has been working with Autism Speaks to make its amusement parks more friendly for guests on the autism spectrum. The resort in Winter Haven, Florida, explained some of the features it has added since then including “quiet rooms” and a pass specifically for guests with autism who may have difficulty waiting in line in a press release. Disneyland Paris also offers this.
  8. Speaking of Disney, as always. Disney, in association with Amaze announced an Autism-Friendly Performance of Aladdin – The Musical will be staged in Melbourne. This special performance will be held at Her Majesty’s Theatre on 12th August, 1.30pm. Aladdin was one of our favourite Disney films growing up.
    You can watch the video here.
  9. Stem cells research: This is the story of Gracie. Gracie is 7 years old and was one of 25 children who took part in the first-of-its-kind study at Duke University in Durham, North Carolina. The study’s goal was to assess whether a transfusion of the children’s own umbilical cord blood containing rare stem cells could help treat their autism.
    The results? More than two-thirds of the children showed reported improvements. A larger second trial is underway, one its researchers hope will lead to long-term treatment for children with autism.
  10. Autism Involves Me: Cathy Lomond is the owner of Hotel Port Aux Basques in Port Aux Basques, Nfld. Cathy, working with Autism Involves Me, decided to create a space where those with autism disorder spectrum (ADS) can relax and enjoy their vacation. “The hotel has a lounge with a calming mural, a swing, a climbing wall and a sensory boat to create a comfortable environment for children with autism. There’s also a kids’ menu available with pictures of the food items, which can help foster independence for children who may have trouble speaking.”
  11. 9 million donation to open Britain’s first international autism centre: The money will be donated by Phones 4U billionaire John Caudwell.  The research and therapy centre will be based at Keele University and will cost £18 million. It will specialise in autism. “I have been deeply affected by the families I’ve met whose lives have been devastated by autism, and rebuilt thanks to the support of the charity. I am proud to support what is set to be a landmark development in the provision of services for the millions of people who are affected by autism on a daily basis.”The Caudwell International Children’s Centre (CICC) will include state-of-the-art assessment suites, a sensory garden to help children interact with nature, family training suites, training kitchens for cooking classes to encourage a healthy diet. It looks beautiful and it stand for something you cannot describe, only feel.
  12. Ambitious About Autism: The Ambitious College has opened its doors at Pears Campus at College of Haringey, Enfield and North East London and West London College. Ambitious College was created to give everyone the opportunity to lead a fulfilling, happy and rewarding life; and this includes young people with autism.“Our learners are at the heart of everything we do, their curriculum is highly personalised to help them achieve their goals.” Read more about it here. You know that I have worked with Ambitious on various different projects, therefore this College is very very close to my hear and I cannot wait to watch it succeed and become part of this amazing opportunity provided to the autism community.
  13. Have you stopped reading yet?
  14. Maryborough Correctional Centre: A pilot program in Queensland has had overwhelming success with inmates training special needs assistance dogs. Unexpected? Over 10 months, the prisoners taught the dogs complex tasks including wheelchair work, opening doors, picking up dropped items and turning on lights, all to prepare them for life with a special needs child. Smart Pups CEO, Patricia McAlister, said the pilot program had been very successful as the increasing demand for trained dogs was “huge” and outweighed the number of assistance dogs available.
  15. Rutgers Center for Adult Autism Services (RCAAS), based in Rutgers University, will “..feature a comprehensive program that is designed to support adults ages 21 to 60 with mild to moderate ASD through a wide range of services specifically tailored to meet their individual needs.” Will offer up to 60 adults with autism, and who live off campus, university jobs supported by clinical staff and graduate students. The second phase of the center will offer a pilot residential program for 20 adults with autism who will work on campus and live alongside Rutgers graduate students in an apartment-style residence.

I chose to end with Rutgers because this time last year we got emails from Rutgers University wishing Christo a happy birthday as part of #Project324. Avramis and Florentina were the 2 friends I asked to distribute the cards and so Rutgers because a familiar name during those months. I’ve copied some below because reading them makes me happy and I hope that reading them will prove to you that awareness is everything.

I hope that with all these new initiatives and stories circulating in the media, not a day will go past without you hearing the A word.

Untitled

1935395_10153976464550030_5896290267119535326_n       13119047_10154091940640030_4231670724499632703_n

1

0

Hope arrives on Sesame Street

Julia has been a work in progress since 2015 when she was first announced. (Autism in 2015)

Christine Ferraro, a writer on Sesame Street for 25 years, along with the rest of the staff talked about how they realised that autism was something that needed to be addressed. They decided they wanted to teach kids more about people with autism, who they probably will interact with at school, playgrounds, supermarkets etc.

“So that when they encounter them in their real life it’s familiar. And they see that these — these can be their friends too.” 

Julia-on-Sesame-Street-Has-AutismJulia (pictured) is really nice and loves to sing. Julia also doesn’t react the way the other

muppets do. For example, when the rest of the muppets introduce themselves, Julia doesn’t respond, she is sensitive to loud noises, and she jumps up and down when she is excited; the rest of the muppets join her, and make a game out of it.

Watch this video from the show where Julia is flapping her arms, and how it is turned into something positive.

Julia is brought to life by puppeteer Stacey Gordon. Stacey is a mother of a son with autismshawglobalnews
. She believes that “It’s important for kids without autism to see what autism can look like.” Julia isn’t exactly a new face — she was first introduced in October 2015 as a digital Muppet through the organization’s broader autism initiative, Sesame Street and Autism: See Amazing in All Children. Sesame Workshop has worked with more than 250 autism experts and organisations to help with its See Amazing initiative. Stacey also draws from her own experiences with her son to portray Julia accurately.
Sesame Street viewers will see Julia get upset by loud sirens, she will have trouble communicating with Big Bird when they first meet, leading Big Bird to think Julia doesn’t like him.

I hope that, by incorporating a character from the spectrum into a beloved children’s show, we will be setting a foundation on which parents and teachers can build autism awareness on. Awareness from a young age about a neighbouring kid, a class
mate or even a stranger at a shop is what will slowly make the autism stigma fade.

My hope is not to eradicate autism, it is to make it visible. Autism is here to stay therefore, when we fight, we do not fight in spite of it but we fight through it.

Sesame Street’s “Meet Julia” episode will air April 10 on HBO and PBS KIDS in the U.S., as well as Cartoonito UK, ABC Australia and Televisa in Mexico. A more global rollout of the episode is planned for later this year.
cbsnews

0

Hope in Disney

553829_10150760901390030_1000986510_nI watched the Beauty and the Beast trailer on TV last night and I felt so emotional. People will say its cliche, or call me a princess because I love Disney films. I watched them all, every day, I know all the songs, the punchlines. It’s a world away from home. It’s how Christos and I bonded when we had nothing else in common.

Facebook drowned me in memory pictures this morning and reminded me that 5 years ago was the first time we took Chris to Disneyland Paris. I had been there the year before to scope it out. I was 22, he was 13 and my mum was exhausted. I had very little patience back then so shout out to my mum for being a saint and dealing with an overgrown teenager and an autistic son all on her own.

He was overwhelmed when we walked in. He didn’t know what was coming, what to expect, what to listen to or see first. The crowds were overbearing and we held on to him tight. By day two he was acting like a local. We were getting off the shuttle one morning and he fell. Suddenly in our heads alarm bells are ringing, the National Guard is summoned. You can see from the pictures that he was a big 13-year-old. He fell, but he didn’t cry. He limped because he still wanted to go to the park, however, he kept wanting to sit down. So, we went to the medical centre and we waited to be seen; after about an hour they just said it needs rest, so we sighed with relief, got him a wheelchair and used it as an excuse to give him anything he wanted. Every day at 5pm he wanted to go watch the parade, he identified his favourite rides, which we visited every day, his favourite crisps and the best ice cream. I won’t repeat myself, you can read about our Disneyland Adventures (volume 2 in 2015) in the  Mickeyminniegoofydonaldydaisypluto series of posts.

This month’s hope is also found in Disney.

Growing up with a brother that didn’t respond to his name, want to play with you and who broke things or rolled around on the floor in anger left little room for bonding. Don’t get
me wrong, I was connected to him from the day we found out he existed, but he never seemed to feel the same. Back when VCR’s were a thing, we had 2 drawers, a big cabinet and a small cabinet full of tapes. Mums family are all film fanatics, they love to chill out watching something and we have definitely inherited that habit. We would record them when they were on TV and then label and put away for watching later.

Despite his aversion to playing with me, he always joined me for a movie. I would put it on, and it would get his attention. Maybe it was that we all went silent when it started, maybe it was the music, the funny voices or maybe it was how much we laughed and how the atmosphere changed when a Disney song came on. We watched them religiously, nearly every day. On weekends we would watch Mickey Mouse or Donald Duck on TV and then in the evenings we would watch the Hunchback of Notre Dame, Aladdin, Hercules, Toy story, Lion King, Snow White, Sleeping Beauty etc. He picked it up quite fast and soon he knew the scenes off by heart. But when Frodo, Jafar, or Maleficent, or the Evil Queen were making an appearance he would hide behind the couch;  listening, but not looking.

Soon after, he started choosing what we were going to watch, he started fast forwarding the parts he found scary and he made sure each box had the correct tape in it. Cute right? No. He also needed all the stickers and covers to be perfect, which they were not because we used them every day. He wanted us to cut off the worn out bits, but cut them straight, and cut them right otherwise you needed to cut more and more and more until there was no sticker or cover left. He would also watch the whole movie, and then would rewind it and watch it in reverse. And because our VCR was old, some of the tapes got caught and were destroyed. My tapes. My Disney tapes. My escape. My world, the one without autism, the one where I was in control because I knew every word and I could count on all the happy endings.

I’m not bitter. Well, maybe a little bit.

It didn’t stop when DVD’s came out, he still ripped them to shreds, he scratched the discs, he ruined the plastic covers. I remember once, I had cleaned one of the discs with a cloth about 150 times. He would look at it touch it, and hand it back. So after the 151st time, I broke it in half. I was like “There, now it doesn’t matter if it’s clean”. Petty right? A bad sister right? The thing is I never treated him differently as a little brother because of his autism. I’d still deny that I had made him cry when mum would ask, I’d blame all broken stuff on him. I stole his food, he broke everything i owned. We yelled at eachother until we cried and we slapped eachother around a little bit. I’d put my foot in his face or throw my socks at him, and he would keep me up all night repeating words until we were both exhausted. And while this is how neurotypical siblings would bond, it wasn’t the same for us.

428326_10150752441475030_1462595363_nI remember how much I missed him, how my friends’ little brothers were so close to their sisters and how much they looked up to them. When I couldn’t get him to hang out with me, I would put on a Disney tape and put the volume right up. I’d hear the game boy music stop, the rustle of a blanket and tiny footsteps running up the stairs. And he would sit, ask me to apologise, turn the volume down and watch the movie with me.

I see a lot of Disney headlines that remind me of those lazy afternoons singing about a whole new world, or those Friday nights at our nans repeating the same old Lion King jokes with our granpa.

For example, Disney’s hit new musical Aladdin, playing in the West End, has announced its first dedicated Autism-Friendly performance will take place on Tuesday 29 August 2017. Wicked did this last year and The Lion King is staging its first Autism-Friendly performance Sunday 4 June 2017.

You may have heard that ‘Life, Animated’ was nominated for an Oscar this year. ‘Life, Animated’ follows the Suskind family and its unique way of communicating with their son — through Disney animated films. Inside his head, Owen created his own stories where he and Disney sidekicks battle villains who represent bullying, depression and even autism itself. The director has said that “Life, Animated” is a testament to the strength of family, the imagination of childhood and the power of story; “Owen is living a meaningful life and it’s not up to us to decide what that is. I’ve never met anyone more happy and content and open and honest about the world around him.” You can read more about it here and you can download it on iTunes or watch the trailer here.

Disney films don’t always have to be about the princess.