Aren’t you distressed by this lockdown?
Imagine the distress of people who find comfort in routine, people who need the security of repetition. Eating the same meal, going to the same shop, drinking the same brand of juice or going to school. We have had a schedule in our home since Christos started using PECS – details here. I talk about it extensively and often because it is central to keeping him calm and happy. The enormous amounts of work parents put into developing their kids communication skills either with PECS or otherwise and teaching everyone to use it is inconceivable – you can read about it on this blog or visit the web pages for autism organisations who share stories. (You can’t spell autism without family)
An autism family spends most of their lives educating at home because even though they may go to school and do homework, they can only get to the point of going to school and doing homework if the family has paved the way. They can only continue to grow, if the family keeps putting down those blue bricks and creating paths for them to take. You don’t understand the time and effort needed our children’s education and every day life. The determination of family and the incredible teachers who contributed to Christos’ education created this 22 year old man who reads, writes, tells time, does math in his head, teaches himself (and us) to use technology and loves (with a bit of encouragement from us) learning new things (if it’s on the daily schedule).
Imagine the distress of those parents who have to home-school children who would otherwise be taught in a special unit or by a speech therapist. Think of parents who have both neurotypical and neurodiverse kids, who aren’t working at the moment, who can’t afford new toys or resources to occupy or educate their own for another 3 weeks. Parent’s who have to reiterate different schedules to persons with autism who don’t understand this sudden unexpected change and disruption to everyday life. By the way, if you or someone you know if having a hard time, there is a lot of information on coronavirus and resources that may help here.
Even though we are all isolating, it is important to remember that some people are more at risk of not surviving social isolation or not recovering from it. Now, more than ever we need to think of others and, while staying home, find safe ways to help others who may be struggling more than you. There are so many ways to be kind – calling, texting, delivering supplies, donating to your local charity, giving away toys or books you won’t use etc.
My plan is to raise money by selling paintings I have painted over the last few years. I am raising money for the SMILE project which operates in Famagusta, Cyprus because “the Cypriot government, while responsible in making education accessible and available for all, has failed to …provide establishments which can cater to adults with autism living in the Cypriot society. Hence, it is left to autism societies, organisations and groups to create their own places of education and development of character.”
But what happens to areas where such an organisation doesn’t exist? Or it doesn’t have the funds? What happens when these schools close because of Covid-19 but some parents, who aren’t working due to the pandemic, still have to pay utilities and rent to keep the school.
“Every person involved in the SMILE project was once just like you. None of us knew autism until it burst into our lives. But we started learning, growing, getting stronger and stumbling the whole way here – to this moment when action was needed yet again. So here we are, getting back up and marching forward, hoping that you will be a helping hand (or smile) by our side” – Smiling September
“SMILE was created with determination to establish a safe, educational space for our kids where the state has failed. It is [operating]…because of the fearlessness and strength of those involved. Those who have done the manual work, donating time and money to ensure that our gentle giants do not suffer the consequences of a state that doesn’t understand them” – 21 and Atypical: The SMILE Project
So, pick a painting you like and make us an offer. These are difficult times, so it’s up to you to make a choice and donate directly to the school http://www.autismsupportfamagusta.com/donate . I will post the painting to you on the weekend after you order it.