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‘Tis the holiday season – no Singing


I am in Cyprus for two weeks. During this holiday I will be posting videos of Christos’ behaviours.It’s unfair to ask for awareness by just writing about it. I want to show you what I mean when I say I cant sing in the car. (Car Routine)

This is every day, this is what it’s really like to live with someone with Autism. This is what Christos is like.

Don’t feel uncomfortable, don’t stop watching, don’t feel pity; just learn.

I’ve mentioned before how we are t allowed to sing; ever. You can’t even hum, or whistle, or mouth the words. Mum got a sore throat once from singing so much and so loud when Christos wasn’t in the car. Even when I’m alone I try not to sing, I’m so scared he’s lurking somewhere waiting to make me apologise for singing. At the pool he likes to have music on, so I tried to get all my humming and whistling done when he was underwater. I mean, we don’t sing that good and most of the time I make lyrics up but he doesn’t like us singing because he enjoys the music so much. So he’ll say “Akouo” which means “Listen” only, don’t sing and ask us to apologise. This is what’s happening in this video.

 

 

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‘Tis the holiday season – Hungry Hippo

I am in Cyprus for two weeks. During this holiday I will be posting videos of Christos’ behaviours.
It’s unfair to ask for awareness by just writing about it. I want to show you what I mean when I say I cant sing in the car; his daily routines; a tantrum; the repetition. If you find it uncomfortable then it’s working, keep watching and keep in mind, this isn’t out of the ordinary. This is every day, this is what it’s really like to live with someone with Autism. This is what Christos is like.Don’t feel uncomfortable, don’t stop watching, don’t feel pity; just learn.

In the previous post he was waiting for his favourite dish – spaghetti with tomato sauce and halloumi – here he is devouring pasta with cream and salmon. He enjoys every bite, i think he’s happiest when he is eating – just like his sister.

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‘Tis the holiday season – Just a boy

I am in Cyprus for two weeks. During this holiday I will be posting videos of Christos’ behaviours.
It’s unfair to ask for awareness by just writing about it. I want to show you what I mean when I say I cant sing in the car; his daily routines; a tantrum; the repetition. If you find it uncomfortable then it’s working, keep watching and keep in mind, this isn’t out of the ordinary. This is every day, this is what it’s really like to live with someone with Autism. This is what Christos is like.Don’t feel uncomfortable, don’t stop watching, don’t feel pity; just learn.

Autism isn’t a disability, it is a difference in character.

Christos is just like any other boy – he likes tickling, making jokes and throwing mum off her floatie. Or just enjoying the pool on a hot day, at 16.30; not earlier , not later. 

 He also likes to help in the supermarket. While we are browsing and shopping, Christos will find any item that is out of place and put it back neatly. Here he is helping his nan:

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‘Tis the season for holiday – #Happy

I am in Cyprus for two weeks. During this holiday I will be posting videos of Christos’ behaviours.
It’s unfair to ask for awareness by just writing about it. I want to show you what I mean when I say I cant sing in the car; his daily routines; a tantrum; the repetition. If you find it uncomfortable then it’s working, keep watching and keep in mind, this isn’t out of the ordinary. This is every day, this is what it’s really like to live with someone with Autism. This is what Christos is like.Don’t feel uncomfortable, don’t stop watching, don’t feel pity; just learn.

This is happiness. He is waiting for his favourite dish, spaghetti with tomato sauce and halloumi. He is laughing for no other reason other than that he is happy.

This is Christos’ favourite song is “Take me to Church”. We had to stay in the car until it finished and he was bobbing his head so I thought I’d video us.

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‘Tis the holiday season – End of a tantrum 

I am in Cyprus for two weeks. During this holiday I will be posting videos of Christos’ behaviours.
It’s unfair to ask for awareness by just writing about it. I want to show you what I mean when I say I cant sing in the car; his daily routines; a tantrum; the repetition. If you find it uncomfortable then it’s working, keep watching and keep in mind, this isn’t out of the ordinary. This is every day, this is what it’s really like to live with
someone with Autism. This is what Christos is like.Don’t feel uncomfortable, don’t stop watching, don’t feel pity; just learn.

This tantrum started because Christos didn’t want to brush his teeth. As you know, brushing teeth is big in the Perera household (Attack of the Toothbrush). The tantrum lasted for 10-15 minutes and this is a video of it almost ending. It’s difficult to record an entire one 1. because they go one for quite a while and 2. because there’s so much going on that a camera is the last thing on my mind. 

This is Christos, he is saying “Papa agkalia” which means “Dad hug”, he is also pretending to cry and telling us that he is crying (“Kleo”). 

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´Tis the holiday season – Dad Routine Video

During this holiday I will be posting videos of Christos’ behaviours. It’s unfair to ask for awareness by just writing about it. I want to show you every day, what it’s really like to live with Autism. This is what Christos is like.

Don’t feel uncomfortable, don’t stop watching, don’t feel pity; just learn.

Note that he stands still and smiles when he notices me because he thinks I am taking a picture.

The start of an argument because I blew him a kiss.

Flat bean time (Dad routine

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‘Tis the holiday season – Nan Routine Video

I am in Cyprus for two weeks. During this holiday I will be posting videos of Christos’ behaviours. It’s unfair to ask for awareness by just writing about it. I want to show you what I mean when I say I cant sing in the car; his daily routines; a tantrum; the repetition. If you find it uncomfortable then it’s working, keep watching and keep in mind, this isn’t out of the ordinary. This is every day, this is what it’s really like to live with someone with Autism. This is what Christos is like.

Don’t feel uncomfortable, don’t stop watching, don’t feel pity; just learn.

As I have already mentioned in Making Routine Flexible c) Chris & his Nan routine Christos likes to drink tea and play with whipped cream for hours. It balances his sensory overload. You think that’s weird? Think again. When every inch of your body is aching from the heat, the sounds, it’s soothing to focus on one thing.