3

#Project324 Team

When my family and I came up with the idea for #Project324 I thought I would never be able to find people in 18 countries, and if I did would they be willing to help? Now that I’ve sent off their thank you presents I’d like to say thank you to each and everyone who took the time to make sure my brother had a beautiful birthday.

Thank you:

Georgia & Sam (Spain & UK): Georgia is my cousin – she did the trial run for the project in Spain and she distributed another 9 cards in London. The lovely Sam translated the text for me in Spanish and together, they gave me so much support and so much courage to keep going and actually follow through with the project. Without you two, this wouldn’t exist.

Amy (Wales & Australia): I met Amy on the LPC course 2 years ago. I gave Amy her cards in March 2016 when we had exams in London – she was leaving the next day to go to Australia, so she took them with her. Throughout the 2 months those cards didn’t leave her bag! Amy was on holiday and even left cards in the aeroplane, Australia and then in Wales when she returned. You are sunshine Amy.

Becky (Dubai): I met Becky on the LPC as well – we had missed each other at induction but bonded over Tax Law. I could not have done this without your support and enthusiasm Bezzo – you are sunshine.

Hannah (UK): Hannah is a friend who used to live in Canterbury. She carried the cards with her in Bristol, Bath and on her regular road trips. You have been a constant support and help, see you soon!

Teresa (Ireland): I lived with Teresa’s sister last year, and met her during that time. Your support has been invaluable – congratulations on graduating and i wish you nothing but goodness for the future.

George (Scotland): George is a friend from Cyprus – he helped distribute the cards in Glasgow, leaving them in parks and trains. You have been so positive throughout this experience, I am grateful forever and promise to repay you in tons of sushi.

Romy & Daniela (Switzerland): These ladies are family friends who jumped at the opportunity to help when one of the countries dropped out and translated the cards to Swiss. They each gave out 9 cards and we got so many responses from Switzerland, e cards and cards through the post. Your willingness to step up and help is so very appreciated.

Avramis, Florentina, Cara (USA): I love these 3 people so much -they know Chris, they’ve known him since he couldn’t speak. Your love and help reminds me how lucky we are to have you in our lives. Some people are forever.

Aamir, Usmaan, Tanvi (Kenya): When it comes to you, words will never enough. I will think of you forever. Usmaan and Tanvi, who i have never met, took the initiative to make my brother a ‘happy birthday‘ video. You put a smile on my family’s face and restored our faith in humanity.

Kimberley (Belgium): I’m so glad I got to share this with you.

Mahmuod (Iraq): We had trouble getting the cards to Iraq, and Mahmuod was kind enough to print them off, cut them up AND distribute them. Your kindness is so moving.

Jonas (Germany): Jonas is just an all round happy person to know – he even translated the cards in German for me. Your positivity is contagious. I hope you succeed in everything you do and end up on an island somewhere with delicious food.

Chantale (Canada): I met Chantale through Autism Canada, she is also an autism sister. She was the first person I bounced the idea off for #Project324 and she jumped on board straight away. I’m so glad I met you, I hope we work together in the future to bring about change for our little brothers.

Chanuki (Sri Lanka): I met Chanuki in in 2006 on holiday in Sri Lanka – 10 years later i can still call on her to help me with a project. That’s the kind of person she is, thank you always, hope to see you on the island soon.

Flora, Maria (Greece): Their positive response was so quick I don’t even remember how it happened – they were so willing to help. You are goddesses.

Pablo (France): France was a last minute choice when cards didn’t arrive to one of the countries. Pablo stepped up immediately to help me with this project. Merci mon pepe!

Emek (Turkey): Emek is one of those people you can depend on, one of those people that will go above and beyond. She was so happy to be a part of #Project324 and even translated the cards to Turkish to make more of an impact. Emek handed out all her cards in 1 day – not only that, but everywhere she went she took time to talk to people and explain the project to them. You are a beautiful person.

Marianna (Ukraine): This beauty translated the cards to Ukrainian for me. She engaged all her colleagues, who also offered to help spread the word and she went to an autism awareness event on the 2nd April and gave them out to the people there are well. You are amazing.

Photini, Zac (Cyprus): I have loved these two people for most of my life. I can’t even begin to describe how powerful your presence is in my life each in your own special, beautiful way. My love for you is endless and forever.

Special shout out to everyone who supported me, asked, listened and shared this with me and people they know. Mum, Dad, aunty Helen, uncle Bambo, Chris, Tash, Malcs, Kat, Ginger, Bob, Nick, Tristan, Maria, Despina, Layla, Sarah, Michali, Demetri, Vantage Mag, ant1wo, Ambitious about Autism, Toni, Nadine, Siobhan, Harmonie, the students in Brussels, the people that wrote in, the people that shared their own stories, the people that picked up that little piece of paper with our story on it.

What more can I ask for when I have friends I can depend on in all corners of the world? Life is so much sweeter because of all of you.

Keep an eye out for your presents in the post 🙂

Advertisements
1

1,000,000 blue balloons

Earlier this year 7,000 people, including teachers (and myself), wrote to Nicky Morgan, the Education Secretary, requesting that autism be included in the ongoing review of the initial teacher training framework in England. In response to a question posed during Prime Minister’s Questions recently, Chancellor George Osborne confirmed the Government’s intentions to make autism a mandatory training subject for teachers in England.

The Education Secretary shares her concern and has personally raised the issue with the chair of the initial teacher training review, Stephen Munday. My right hon. Friend has stressed the importance of ensuring that teachers are properly trained to support young people with special educational needs and specifically autism. As a result, the chairman will include recommendations in the report on how core teacher training should cover special educational needs. The report will be published shortly.

Yes, that’s right. Autism training is not mandatory for teachers. In fact, some have no special educational needs training at all. The teachers and lecturers are not the ones responsible for asking for it to be part for their training. I know so many friends that take up extra reading to better understand the people they teach who are on the spectrum. I think a teacher is one of the most important people we interact with. My friends are teachers. This is not their fault – the fact that no one has thought to include basic disability training in teacher training is the government’s fault – because, instead of investing in the future they are busy blaming each other about the past, leaving them unable to deal with complex issues that could damage a child’s education. The diagnosed autism rate in the UK at the moment is 1 in 100. With over 70% attending mainstream schools the odds that a teacher will teach, or has taught a child on the spectrum are pretty high.

Teacher training in autism is adding value to the teacher’s education and work. They can understand their pupils even better, they can update their curriculum, they can adopt, invent different ways of teaching.

Teacher training in autism enhances the autistic student’s education. It means that they are acknowledged, it means that they get the help they need, it means that they are less prone to being isolated because of being left behind.

Teacher training in autism benefits the rest of the class. It means that inclusivity, equality and understanding is promoted much earlier on. Children will learn to embrace and support their peers rather than bully them. If students attend a friendly, helpful and understanding environment every day, if their role models are equipped to handle tricky or exceptional situations, it will transcend into the way they interact with people for the rest of their lives.

This is our legacy for generations to come.

This isn’t just an initiative. This isn’t just one balloon.

This is a million blue balloons all at once.

13131551_10154051014870731_3050105381610753110_o

The amazing lecturers I get to call my friends wishing Christos a Happy Birthday for #Project324. And happy 3rd birthday to the gorgeous little Elisa ❤️

1

The world of Silver Linings

There’s two worlds in this world: 1) the world we live in and 2) the world of silver linings.

This world:

I have been reading a lot of articles lately about how the world seems to forget that kids with autism grow up to become adults with autism. And I get it; as an autism family/community we often feel neglected and helpless. When the kids get diagnosed the first thing you hear is “Sorry, we don’t know what causes it” or “There is no cure“. We grow up in a community in which we have to shield ourselves and our family members from criticism and discrimination. It’s not a great way to start life off. Feeling helpless is an everyday thing for families with autism, every minute of every day we are helpless. The comparison to other children, other families doesn’t help the helplessness; it reinforces it. Having a child diagnosed with autism is pressure, having that child grow into an adult with autism is terrifying. I’ve talked a lot of the stigma that follows us when we walk around as an autism family – well, now I’m thinking about the expectations society has of adults. Terrifying.

In 2012, the National Autistic Society (NAS) conducted a survey on the conditions under which adults with autism have to work. It found that 43% of respondents said they have left or lost a job because of their condition. Only 19% said they had no experience of bullying, unfairness or lack of support at work. The NAS’ survey found that only 10% have employment support, despite 53% saying they would like it. In addition, 32% said the support or adjustments made by their employer/manager in relation to their autism are poor. Colleagues were not much better, with 30% of respondents saying the support or adjustments made by them in relation to their autism is poor. I can’t even.

Silver Linings:

Silver Linings is a world we have created. In my head, it has very high ceilings and no stairs, or chairs or anything you can climb on. The silver linings are like balloons that deflate just a tiny bit every time progress is made. You go to silver linings when you are scared, because its a place of hope. It’s a place where fears and insecurities can be calmed because there are so may prospects and wonderful works in progress. So, we go to Silver Linings to watch for any balloons we can reach and move to our world.

  1. Autism Initiatives was featured in the Derry Journal in February because they are changing the lives of local adults living with autism. They are being funded by the Housing Executive, through its Supporting People Programme and helping autistic adults with skills and tasks such as housing issues, cooking, cleaning, money management, paying bills and contacting authorities. The support is provided by a small team of Floating Housing Support Workers, with Margaret McLean and Alicia Munoz Herrero based in Derry, and their colleague Patricia Irwin based in Omagh.
  2. On the 30th May, Ford joined the growing list of companies who are launching initiatives to include adults with autism into the workplace. Ford Motor Co. will create five positions in product development suited to the skills and capabilities of workers with autism for the program, called FordInclusiveWorks. Ford’s vehicle evaluation and verification test lab will allow the adults included in the programme to log and prep tires for test vehicles. “The work is highly structured, requires a great deal of focus, and calls for a high level of attention to detail and organization. Skills required to complete this task safely and with a high level of quality lend themselves to strengths typically associated with individuals with autism.” Ford will evaluate the performance of the five new employees after an undetermined time and potentially offer permanent full-time employment.
  3. The Abilities Centre in Whitby has put in place the Worktopia programme which offers free help to participants in developing skills necessary for finding employment. EmploymentWorks is one of three new Worktopia programs that focuses on improving the employment futures of adults with ASD. Programme co-ordinator Cathleen Edwards says “Ninety-five per cent of the general population can find a job. When you go to the population of people with disabilities, it goes down to maybe about 65-70 per cent. When it comes to people on the spectrum, it goes down to probably about five or six per cent, or 10 per cent.
  4. This month Glendale Community College is launching a unique programme to train highly functioning adults with autism to operate computer-numerical-control machines; their aim is to equip them with experience and knowledge for work as machinist apprentices or computer numerical control operators and programmers. The upcoming training is the result of the college’s new partnership with the Uniquely Abled Academy, which is part of the Uniquely Abled Project, based in Valley Village. So, on the 20th June the students will get taught by instructors for 300 hours – this will include lab time and soft skills, such as interviewing and CV building. The criteria to enrol include the ability to function independently in social and academic settings, demonstrate a competence in basic math, reading and computers, students must also be at least 18 years old and have earned a high school diploma or GED. Ivan Rosenburg said “Hopefully, we’re starting a revolution.

The revolution has already started; you can find it in every initiative, in every diagnosis and it gains a tiny bit of momentum every time you hear or talk about autism. We are so lucky to be a part of this generation. We get to see the labour of all the revolutions before us bear fruit. We are empowered by the rigorous upholding of our civil liberties and human rights to move forward and launch a new age in the autism sphere. We get to break the sphere and move beyond it.

We get to fly over to Silver Linings pick up the ones we can reach and make them part of our world – and that’s when the world we live in stops being terrifying.1

1

Sisters

I read a story yesterday about an autism sister who was in a glass box for 50 hours to raise awareness for autism.

 Meg Jones, 21, has a brother on the spectrum – he has Aspergers. She stayed in a 3x2m glass box for fifty hours and raised over £3,000 for charity during the challenge. She set this up at Dundee’s Tesco Riverside store as a metaphor for the isolation those with autism can face. Regular shoppers used post-its to leave her messages of support. “It was difficult trying to speak to people on the other side of the box, I wasn’t hearing what people were saying. A lot of families that have a child with autism have said that getting funny looks when they’re out and about is something that they have to deal with on a day-to-day basis. So, there were a lot of people walking past and just looking at me like, ‘what on earth is she doing in a glass box?'” 

During the last couple of years I’ve met sisters from all over the world. There’s an unspoken bond between us because we live the same lives in different cities, with different people; we had the same childhood yet we have never met. We find inspiration in random places and we build our lives around our siblings. We are sometimes the Others. All these women are strong, motivated and kind; they go above and beyond every day and they do it with grace and candour. They are an inspiration to me.

Chantale, an ambassador for Autism Canada who also took time to help with #Project324, released a song for her two younger siblings, Mike and Kevin who are on the autism spectrum, in 2014. Her lyrics speak to me, as i imagine they do to all siblings, in a way that can’t be described.

I follow a page on facebook called “Autism Through a Sister’s Eyes” which is written by Shaina and follows the journey of her amazing brother Josh, who is on the spectrum. Josh is funny and smart and his stories make me me smile, Josh is so much more than his autism.

Erin wrote to me a year ago telling me about her younger brother with autism and how she was in college getting her diploma and on her way to becoming a Developmental Services Worker.

Liana talked to me about how she believed that everything she is was because of her little brother, Petros. She studied speech therapy.

Michelle studied Cognitive Science Studies because she wants to “show the world true autism and what it can create ❤ “.

I’ve had the opportunity to meet so many beautiful souls through sharing our stories – and the sisters I meet are like sisters I’ve had all my life; it’s a bond we have no words for.

21 3

2

#Project324: The Beginning

Its been 3 weeks since Chris turned 18. For his 18th birthday Christos received over 200 wishes from people all over the world on facebook posts, blog comments, private messages and emails.

His story was published in 4 different countries, shared over 100 times and read by more than 5,000 people (ant1wo, omonoianews.com, Ambitious About Autism, Vantage Magazine, International UN day).

#Project324 was distributed in 18 countries (the Wales cards were split between Wales and Australia). From these 18 countries, we got responses to cards from Sri Lanka, Wales, Ireland, England, the USA, Iraq, Switzerland, Kenya, France, Greece and Cyprus. People from 11 out of the 18 countries found one of the cards I cut by hand, visited the blog and took the time to send us a message for Christos’ birthday.  map

Christos got postcards from Switzerland, ecards from the UK, a t-rex from Brussels and a beautiful video from Kenya (which I still watch every single day). People helping with the project, and people responding to this project went above and beyond to make sure that my brother got a birthday wish. The messages, love and support we got throughout the 3 months #Project324 ran were overwhelming.

1935395_10153976464550030_5896290267119535326_n13133196_10154086117890030_6403579232625664683_n 13062423_10154075531140030_6696275216867756523_n 13094155_10154081398375030_2694952740982988143_n
13119047_10154091940640030_4231670724499632703_n
13151536_10154084176245030_6459860019899699463_n

 

#Project324 is the beginning.

The project isn’t over – #Project324 is for the rest of our lives.

1

#Project324 Trump, Republicans and Disabilities, oh my.

It’s been a bad day.

  1. It’s the last day of my brother being 17. From tomorrow he will be an adult.
  2. It’s the end of #Project324.
  3. Christos woke me up today at 730am.
  4. It’s raining when it’s supposed to be 30 degrees.
  5. And Donald Trump is very likely to be the Republican nomination for the US elections.

The scariest part is that, now, not even a cataclysm could stop him. We have been living in the perfect storm for a year now and through it Trump has risen. What have we done to stop him? Jokes, dinner conversations and brushing off any chance that he may be the next president of the United States. You may be wondering – what do we care? We are all the way across the pond. A person like Donald Trump paying his way to becoming a president is something humankind should be ashamed of. A man who preaches sordid, morally repugnant, racist, sexist comments. A man who fat-shames women, used menstruation as an insult, has threatened to build a wall between the USA and Mexico and has suggested banning all Arab descendants from the country he intends to lead; this man is presumably in the forefront of a presidential election. A man who mocked a New York Times reporter, Serge Kovaleski, who has a chronic condition called arthrogryposis which affects the movement of his arms.

What does this mean for the future of our community? If a racist, megalomaniac, narcissist, who started life off with a ‘loan’ of 1 million dollars is in charge of one of the most powerful states in the world? It means that he will be in a position where he can exert his outdated and unintellectual ideas onto the international community. He will be part of international summits, he can make strategic movements which can affect international relations, peace treaties, warzones and he can look at refugees in the face and tell them they are not welcome in America. This is not a world i want my brother to be an adult in.

Leaving aside the real side of the devastation a Trump rule would bring, lets look at the ethical consequences. Where a corrupt man like Donald Trump is allowed to take over the most powerful seat in a country – how can we ever expect to live in a world where equality, diversity and respect for each different human are upheld? What will stop every other racist moron to run for president? What role models will the next generation be inheriting?

There is no time like the present to make a stand. Go out and vote, fundraise for refugees, volunteer at a homeless shelter, learn about disabilities. Read about current issues and get involved. Make changes, make a difference, leave your mark on the world. Don’t let our kids, your kids, all the kids grow up in a war ridden world, where refugees are treated like anything less than humans.

Don’t let our legacy be a Trump.

If you need your faith in humanity restored, here are some messages we got for Christos’ birthday.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

0

#Project324 Helping exceptional children live exceptional lives

leka-features.pngYesterday, 3rd May, a smart toy called Leka was released on Indiegogo. Leka is a super cute, robotic smart toy which was designed to change the way children with developmental disorders learn, play and progress. It’s not meant to replace therapy, it’s meant for enabling therapies; sensory and speech among others. Leka is a Bluetooth-enabled interactive toy and has been scientifically tested over the past two years in France and the US.

Leka has many functions, including games that build motor, cognitive, and emotional skills. “As robots have the ability to be predictable in their actions—an important trait for children with developmental disorders—Leka is able to give users a sense of safety. Coupled with this predictability and Leka’s capability to stimulate a child’s senses, Leka can socially engage children and nurture greater, more efficient progress.

Indiegogo campaign offers it at a low price point, $390.

Leka is a unique technology because, unlike computer based games, it will collect information that can contribute to a fuller understanding of Autism. We will have affordable, interactive technology which has been especially designed for autism, which will also give us personalised data from each individual user. Leka will record how children handle the device, how much time they spend on the activities, and how quickly they react.

#Project324 is receiving lots of love from Turkey, Wales, Switzerland, Kenya, America and Iraq. The project is nearly coming to an end. A Disney end.

Wales

13091672_10201777312751297_1728310230_o

 

 

 

 

Turkey

13128956_10154128899733688_257755157_o 13113363_10154128898948688_1232803911_o